Resource Hub
Tools, programs, and trusted resources that support individuals and families affected by Sickle Cell Disease.
The Metropolitan Seattle Sickle Cell Task Force goes beyond awareness. We connect you with programs, care, and knowledge that empower daily life with Sickle Cell Disease. Whether you need housing, counseling, education, or retreat opportunities, these resources are designed to strengthen the body and spirit of our community.
Here to Help You Thrive
Medical & Educational Resources
Access reliable information, local providers, and helpful guides to better understand and manage Sickle Cell Disease. Whether you’re a patient, parent, or healthcare partner, these resources are here for you.
🏥 WA State Sickle Cell Providers
Clinical Trials
ClinicalTrials.gov is a Web-based resource that provides patients, their family members, healthcare professionals, researchers, and the public with easy access to information on publicly and privately supported clinical studies on a wide range of diseases and conditions.
📘 Sickle Cell Trait Tool Kit
A collection of resources to understand Sickle Cell Trait.
GOT Transition
GOT Transition is a national resource that helps young people with chronic conditions prepare for adult medical care. Their tools and guides support youth, families, and providers with step-by-step guidance for building confidence and independence.
🧬 Bleeding Disorder Foundation Of Washington
BDFW supports all blood disorders with patient assistance and advocacy.
Letter to Employers for Caregivers
Guidance for employers on how to support team members who care for a loved one living with Sickle Cell Disease.
504 Plan for Educators (PDF)
Guidelines to help teachers support students with Sickle Cell Disease in the classroom.
Letter to Employers FOR SCD Patients
A clear, supportive letter you can share with your employer to help them understand Sickle Cell Disease and the flexibility you may need at work.
Sickle Cell Disease Association of America (SCDAA)
National organization offering education, advocacy, and trusted resources for individuals and families impacted by Sickle Cell Disease.